What do we do?
Members of the Cancer Patient Forum offer a ‘user’ viewpoint on:
➢ Standards of treatment and care
➢ Patient information and communication
➢ Improvement of existing services
➢ The development of new services
At the heart of the Cancer Patient Forum are local meetings (4/5 times / year) which provide an opportunity for people affected by cancer and professionals to come together – to share views on current cancer care and new developments.
Three Locality Groups based in the North West (Bangor), Central (Rhyl) and North East (Wrexham) enable patients and carers to have their say on local issues in addition to getting involved in developments to cancer care that may be relevant to people across the region.
A Strategic Group meeting in Rhos on Sea, agrees key goals for the Forum, coordinates activities, and promotes the sharing of information on current ‘hot topics’. This Group has direct links with Betsi Cadwaladr University Health Board, and other relevant organisations, ensuring that views from the Forum are being heard and are making a difference.
Forum Groups enable patients and carers to work in a positive partnership with healthcare teams.
We welcome new people!
Listening to the views of people who have a personal experience of cancer can be a powerful way of ensuring that cancer services offer the quality of care that people really want and need.
Even if you are unable to attend meetings, for whatever reason, the Cancer Patient Forum still values your contribution. Your views and suggestions for improving cancer care are important and by making them heard you can help make a difference for others. You can share your experiences in a letter, by phone, email or via the Your views section of our website.
You can also become a ‘virtual’ Forum member, receiving regular information and contributing your views by email.
What have we achieved?
- We have provided a ‘user’ viewpoint to reviews of cancer services in North Wales e.g. the centralisation of some services to centres of excellence
- We have contributed views about cancer care at a national level.
- We highlighted a need for better cancer information resources in North Wales – we now have a Macmillan Information and Support Centre at each of the three main hospitals in North Wales and continue to work in partnership with this service.
- We have organised events, bringing together people affected by cancer
- We comment on patient information leaflets
- We have provided a patient viewpoint on hospital cancer environments.
- We have developed and continue to maintain a website, bringing together information about local services and sources of support for people affected by cancer in North Wales
- We recognised the need for improved support for ‘cancer carers’. We have developed information resources specifically for people who are caring for someone affected by cancer
- We have contributed to the training of health professionals by providing a patient perspective of cancer care
For more detailed information on our activities you can view our Newsletters and Annual Reports.